International CTEPH Association (ICA)
The International CTEPH Association is an organisation of physicians, surgeons and other medically qualified professionals committed to advancing the diagnosis and treatment of CTEPH, and thus improving the clinical outcome and long-term care for affected patients.
The Association’s key objectives are to:
• Increase awareness of chronic thromboembolic pulmonary hypertension (CTEPH)
• Advance research and evaluate new therapeutic approaches in CTEPH
• Foster worldwide collaboration among CTEPH centres
• Improve education to facilitate training and improving education of emerging centres
• Provide clinical expert opinion to surgical and interventional centres
The ICA is dedicated to working together with patient organisations and partners to reach these objectives. The Association ensures that all projects undertaken are to the benefit of patients exclusively and remain independent of commercial interest.
Current ongoing initiatives:
• TEAM registry
• Triennial International Conference on CTEPH
News
Long-term effects of medical treatment in the New International CTEPH Registry published in ERJ Open Res
The ICA are delighted to announce the publication of data on the long-term effects of medical treatment in the New International CTEPH Registry (Delcroix M et al., ERJ Open Res 2025; 00769-2025; DOI: https://doi.org/10.1183/23120541.00769-2025). Data suggest that treatment with a guanylate cyclase stimulator may be associated with a survival advantage in patients undergoing BPA or no mechanical intervention, thus confirming the results of previous randomised controlled trials in a real-world setting.